Gabriel is 8 years old and has undergone 21 surgeries in his life. He was born with Treacher Collins Syndrome, an anomaly on the face that is portrayed in the movie Extraordinary, which has just hit theaters.
TOUCHING: BOY WITH RARE SYNDROME PORTRAYED IN THE MOVIE "EXTRAORDINARY" UNDERGOES 21 SURGERIES TO LIVE A NORMAL LIFE
BOY WITH TREACHER COLLINS SYNDROME HAS MULTIPLE SURGERIES TO MAKE HIM SMILE AGAIN
The diagnosis of the disease was made 40 days after the birth of Gabriel and his twin sister, Marina.
The family is a native of Paraná, but it was in Bauru, in the interior of São Paulo, that the family found the Hospital of Rehabilitation of Craniofacial Anomalies of Bauru, better known as Centrinho, where Gabriel receives the treatment.
Patients with the syndrome, which affects 1 in 50,000 babies worldwide, require a team of professionals such as dentists, speech therapists, psychologists, geneticists, and physicians who deal with aesthetic procedures.
Poor facial training makes breathing difficult, which is why Gabriel had to go through 21 surgeries so he could have a better quality of life.
Centrinho's craniofacial surgeon Cristiano Tonello explains the reasons for Gabriel's condition. "The syndrome is a rare genetic disorder that is characterized mainly by the involvement of the bones of the face, such as flattening, jaw and chin becomes very small, which lead to respiratory and aesthetic problems in children," says Tonello.
Gabriel, despite the difficulties and frequent care, lives a normal life. "I want to be a vet! Because I like animals. Before I wanted to be a doctor and then a firefighter, then a police officer, but now I've decided that I want to be a veterinarian, "he says excitedly as he thinks about the future.
The movie Extraordinary, based on a book by JR Palacio, was released on December 7th. Directed by Stephen Chbosky, tells the story of a boy, played by Jacob Tremblay, who has the Treacher Collins Syndrome.
The film shows the daily life of the boy who is bullied at school and strives to adapt to a prejudiced society. In addition to Tremblay, the film stars Owen Wilson and Julia Roberts, who make the boy's parents.
Published May 20, 2018